Kiacta in Sarcoidosis - Forum

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November 14 2014 at 10:07am

Because this is such a diverse disease that can strike anywhere in your body the symptoms and diagnostic testing can be confusing. The treatments are things designed for other diseases that somewhat lessen the impact but have serious side effects. There is not much knowledge by primary care providers or patients as to what the disease will and can do and what to do about it. For example I recently learned that the calcium leeching effects of sarcoidosis can cause brittle teeth with a predominance of breaking off at the gum line. I suffer from this problem. I asked in a support group if anyone else did and got 25 positive responses and none of them knew it could be caused by the disease. We need more and better information. We need one or two diagnostic tests that can accurately measure the extent of active disease. Finally we need a treatment with fewer serious side effects than the steroids and antirheumatoid medications currently used.

October 22 2014 at 11:11pm

If possible, is there a way to measure an increase in the length of time between flare-ups?

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